Maureen Yancey, aka J Dilla's mom, recently attended a benefit for Lupus LA with Hustle & Flow actress Taraji P. Henson (both pictured above). In the wake of her son's death from lupus, Ms. Yancey has been encouraging the hip hop community to educate themselves about lupus and to become involved in fighting this disease that disproportionately affects black women. Because most of the folks struggling with this disease are women, men may be even less aware, but the passing of J Dilla aka Jay Dee should be a reminder that men are also affected.
My own mom has struggled with lupus for many years, though she's really doing great right now. But, along the way, there have been some dark years. Lupus is a weird disease. I've understood it as an autoimmune disorder in which the immune system attacks oneself but it's more complicated than that. For something more scientific on an introductory level, you can read What Is Lupus? to get a sense of how little is still understood about this disease.
One of the big problems with lupus is that there isn't a test one can take to see if one has it, though there are many symptoms and indicators. Unfortunately, many of the signs of lupus are also associated with other diseases and so misdiagnosis has been a big issue. Lupus can also come and go, with symptoms appearing that destroy one's ability to function, then disappearing, sometimes to go into remission, sometimes to return at a later date.
Lupus also doesn't necessarily display symptoms that are visible, so someone struggling with lupus can be feeling incredibly bad to the point of not really being able to function and folks around them will just have to take their word for it. Such a situation can get really weird as my mom discovered in the work force where saying she was having a bad day, which for her means she's having an incredibly bad day to the point of almost not being able to function, would get treated by coworkers as a mundane experience.
I'm not saying this well, but it's really difficult for folks with lupus to not only be struggling with the disease but also with the incomprehension of those around. In my mom's case, at work, it was particularly weird because she was a nurse dealing with the ignorance of other nurses! Fortunately, awareness has advanced since that time, but we've got a long ways to go.
For more information, the National Institute of Health's Medline Plus on lupus is a great resource for introductory material, some of which is in Spanish.
Official site: Lupus LA
Related ProHipHop Coverage:
Jay Dee Passes On
Hip Hop Bloggers Pay Their Respects to Jay Dee
More Bloggers On Jay Dee With Audio/MP3 Posts
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